I am proof that life can change dramatically in an instant!
This past week as I was leaving a coffee shop with my Mom, I had some sort of bizarre brain event. . while we were having coffee and chatting, my Mom said that I was acting very strange, falling asleep at the table…I do not remember that, but, I do remember telling my Mom as we left, that my latte must not have settled because I was feeling a bit nauseous. Somehow though, I drove us home, although my Mom said that I was weaving all over the road. I don’t remember any of that either. When we arrived back at my house, Mom said I was very confused. My Mom ran into the house to get Tom, yelling for him to come because ‘something wasn’t quite right with Linda. They weren’t sure what was happening to me, but, they knew I was not acting normal. Tom called for an ambulance, and, even though it was there within minutes, I have no recollection of that. the EMT’s drove me to UW Hospital East ER, but, again, I have absolutely no memory of that ride. The first thing that I do remember after getting into my car at Grace Coffee Shop was someone attaching a huge oxygen mask to my face in what must have been the ER. I didn’t know what was happening to me, I did not know where I was…but, I did hear people around me talking about how high my CO2 level was…and, they were very concerned about that. Tom told me later that the nurses and dr’s were asking me questions and I was answering them, like, “What kind of coffee drink did you have, What is your Social Security Number? Which is so bizarre because my mind was not working in so many other ways, but I knew my social security number!
Later that day, after all the blood tests and CT scans, and an MRI, the doctors began to have an idea of what was going on, and decided to transfer me to the downtown UW Hospital where the Neurosurgeons could work alongside The Infectous Desease Team there to determine exactly what was growing inside my brain, and how to best treat it. On Tuesday night, my Neurosurgeon came to see me to tell me that he was going to open up my brain and take out the tiny infectous cyst that was apparently growing there. Finally, on Thursday morning they were able to get me into an operating room, and I had brain surgery to remove the infectious cyst. I remember laying on the operating table wondering if that was going to be my final scene, terrified, and praying to all the higher powers that be, to please let me live. So, when I woke up and saw the handsome face of my doctor, I was quite relieved. Giddy, in fact! Tom said that I was literally laughing! I learned that he had successfully removed the cyst-which was very tiny, but, deep within my brain. I learned that the Infectous Desease Team already had the Infectous material and had begun growing cultures from it, in hopes that they would soon know what the bacterium or fungus was and how best to treat it. On Sunday, June 15th, they found the answers they were waiting for. They learned what the bacterium was, and determined how they were going to treat it! So, I was transferrred home, with a long term plan of twice daily antibiotic infusions. The nurses who came to our home to administer the infusions taught Tom how to administer them, once I was released, and I am now getting my infusions at home by nurse Tom, feeling good, fighting my way back to ‘normal life’, although I suspect life will never be the old ‘normal ever again. I already feel different in a myriad of ways, everything makes me weepy and everything makes me profoundly grateful to be alive. And, I suspect that as some more time passes, and I am able to look back and realize how critically ill I was, that life will change some more.
It still boggles my mind to say I had brain surgery! I don’t know if I will ever get used to saying that.
I am so very grateful for the brilliant doctors and medical teams at the University of Wisconsin Hospitals. I am here because of them, and the Grace of God.
I am still asking myself daily if this has all been a dream?! (Or, nightmare?!)
In an alternate Universe none of this has happened. I like that idea most of all, so I think I will go with that! Unfortunately (or, fortunately??) my big, badass scar reminds me that it really did happen, and I survived.
Xo